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Gluten Free RN

Gluten Free RN, Nadine Grzeskowiak RN BSN CEN, talks about every aspect of celiac disease, non-celiac gluten sensitivity, gluten free lifestyle & diet, Paleo lifestyle, microbiome and all related issues.
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Now displaying: May, 2017
May 26, 2017

We typically associate liver disease with alcoholism. But the liver functions as a filter, and over time it can be damaged by certain pharmaceuticals and even food. In fact, research suggests a strong correlation between undiagnosed celiac disease and non-alcoholic steatohepatitis (NASH).

The Gluten Free RN shares a number of case studies in which a diet change reversed liver damage and prevented the need for an organ transplant. She also takes us through the alarming statistics regarding NASH in children and discusses her approach to treating NASH patients. 

Listen to understand the obesity trends in the US and how a sedentary lifestyle plays a part in liver disease. Join Nadine’s campaign to educate the population about the benefits of a gluten- and dairy-free, whole food diet – and prevent NASH!

What’s Discussed: 

Nadine’s introduction to NASH in children

  • Videoconference of pediatricians
  • Discovered NASH on autopsies
  • Few had signs/symptoms

The fundamentals of NASH

  • Liver failure caused by changing environmental factors
  • Dietary culprits (e.g.: sodas, fast food, processed foods, alcohol, high fructose corn syrup, nutrient-deficient carbs)
  • Up to 90% of patients undergoing bariatric surgery have fatty liver disease
  • Only diagnostic tool is liver biopsy

Obesity trends in the United States

  • 60% of people in 13 states will be obese by 2030
  • Link between poverty and obesity

Why starving people are obese

  • Lack of nutrient-dense food results in low nutrient levels
  • Body compensates for deficiencies by storing fat as cheap energy

The correlation between undiagnosed celiac disease and NASH

  • Celiac disease found in 10% of patients with unexplained abnormal liver panels and 3.5% of patients with NASH
  • Anyone with bump in liver enzymes should be screened for celiac disease and given gluten-free diet option

The 2015 Canadian study re: liver transplant

  • NASH as most common indication for liver transplant in North America
  • NASH projected to be leading cause by 2025
  • Identified obesity, sedentary lifestyle, highly processed foods, undiagnosed celiac disease, MS and type 2 diabetes as causes

The basics of non-alcoholic fatty liver disease (NAFL)

  • Buildup of fat in liver cells
  • Largely asymptomatic until have profound liver/organ failure

Which populations are at increased risk for NASH

  • Obese
  • Hispanic
  • Native American
  • Pediatric

Liver transplant statistics

  • 16,000 people on waiting list for liver transplant
  • Only 6,000 liver transplants performed each year

Case study demonstrating the reversal of liver damage on gluten-free diet

  • 19-year-old woman referred for emergency liver transplantation
  • Recovered quickly on gluten-free diet, normal liver and small intestines after 20 months
  • No surgery required

The correlation between celiac disease and liver disease

  • Celiac patients at increased risk of NAFLD compared to general population
  • Most common cause of chronic liver disease in children and adolescents in western nations

How Nadine approaches a patient with NASH

  • Examine diet (food as medicine/poison)
  • Replace highly processed fats
  • Leverage minimally processed foods

How to combat obesity

  • Educate people about the value of nutrient-dense food
  • Provide medical and social support

The liver as a detoxing organ

  • Functions as a filter
  • Can be damaged over time by foods, acetaminophen, alcohol

What a good, whole food diet looks like

  • Gluten- and dairy-free (ideally Paleo)
  • Includes meat and fish, nuts and seeds, organic fruits and vegetables

The need for access to accurate nutritional information

  • Not influenced by politics, food corporations, agribusiness or pharmaceutical companies

Resources:

PubMed

“Sonographic Diagnosis of Coeliac Disease in a Case with Suspected Acute Liver Failure” in the European Journal of Gastroenterology and Hepatology

“Non-Invasive Diagnostic Biomarkers” by Dr. Rohit Loomba of UC San Diego

“Acute Cryptogenic Liver Failure in an Untreated Coeliac Patient” in the European Journal of Gastroenterology and Hepatology

“Increased Risk of Non-Alcoholic Fatty Liver Disease After Diagnosis of Celiac Disease” from the Journal of Hepatology

Connect with Nadine: 

Instagram

Facebook

Contact via Email

‘Your Skin on Gluten’ on YouTube

Books by Nadine:

Dough Nation: A Nurse's Memoir of Celiac Disease from Missed Diagnosis to Food and Health Activism

May 19, 2017

‘With our technology, every time a woman dies, it’s a medical error.’

 Recent reports have uncovered some alarming statistics regarding maternal mortality rates in the United States. While these numbers are on the decline in every other developed nation, pregnant women in the US are at greater risk of dying than they were in recent years. We know that undiagnosed celiac disease has a significant impact on maternal health and fetal development, and we must identify expectant mothers (and fathers) who have the potential to reap remarkable benefits from a simple diet change.

This issue is especially important to the Gluten Free RN as a mother herself – as well as an emergency ER nurse certified in PALS, NLS and pediatric emergency nursing. She shares the stories of women who had difficulty getting pregnant or maintaining pregnancies as a result of undiagnosed celiac disease and gluten sensitivity, and explains how a mass screening could work to prevent such intense suffering.

Listen to learn how adopting a gluten-free or Paleo diet can help women carry their babies to full-term and deliver healthy, thriving children!

What’s Discussed: 

Nadine’s mission to get women tested for celiac disease prior to pregnancy

  • Allows to absorb nutrients during pregnancy (including prenatal vitamins)
  • Can deliver healthy, thriving child

 The story of Alice Bast

  • Suffered miscarriage and still births
  • Multiple doctors couldn’t provide answers
  • Vet gave idea to test for celiac disease
  • Founded the National Foundation for Celiac Awareness

 The necessity for a mass screening of men and women

  • Identify HLA-DQ2 and HLA-DQ8 gene carriers
  • Genes of both parents affect fetal health
  • Ratio of women to men with celiac disease is 1:1
  • Ratio of women to men diagnosed with celiac disease is 3:1

 The increased risks for pregnant women with undiagnosed celiac disease

  • Miscarriage
  • Still birth
  • Low birth weight
  • Failure to thrive in children
  • Pre-eclampsia/eclampsia (dangerously high blood pressure)

 The role men play in infertility

  • ED, low sperm count and low libido may be attributed to undiagnosed celiac disease
  • Symptoms include deficiencies in zinc, magnesium and B vitamins as well as anemia and osteoporosis

 The argument that a mass screening for celiac disease is too expensive

  • The cost associated with undiagnosed celiac disease is much higher
  • Consists of medical costs from complications
  • Also includes decreased productivity and morbidity/mortality
  • Study published in Science Digest found that 42,000 children may die annually due to undiagnosed celiac disease

 Conditions that indicate high risk for celiac disease

  • Chronic GI issues
  • Irritable bowel syndrome
  • Weight loss/gain
  • Iron deficiency anemia
  • Vitamin/mineral deficiencies
  • Secondary hyperparathyroidism
  • Unexplained elevations in liver function
  • Down, Turner or Williams syndrome
  • Type 1 diabetes
  • Lupus
  • Autoimmune thyroid disease

 Sam’s story

  • Delayed puberty (didn’t get period until 17-years-old)
  • Diagnosed with celiac disease at 19
  • Doctors warned she would probably never have children
  • Raising two healthy boys

 Why Nadine is concerned about the current generation of children

  • Higher rates of autoimmune diseases, cancer and learning disabilities

 The appropriate diet to promote maternal health and proper fetal development

  • Gluten- and dairy-free
  • Paleo is best
  • Humans have enzymes to break down meat proteins
  • Humans do not have enzymes to break down grain proteins
  • Avoid wheat, barley, rye and oats
  • Embrace meat, fish, eggs, fruits, vegetables, nuts and seeds

 Deficiencies that can be corrected to promote healthy pregnancy

  • B6 and B12
  • A, D, E and K (the fat-soluble vitamins)
  • Magnesium RBC
  • Zinc

 The US maternal mortality rate compared to other developed nations

  • Rising in the US, declining in other developed nations
  • 28 deaths for every 100,000 births in 2013, up from 23 in 2005

Resources:

“Maternal Mortality Rate in US Rises, Defying Global Trend, Study Finds” in The New York Times

“Focus on Infants During Childbirth Leaves US Moms in Danger” on NPR

Beyond Celiac: Alice Bast

“Reproductive Changes Associated with Celiac Disease” from the World Journal of Gastroenterology

“Celiac Disease and Reproductive Health” from Celiac Disease: A Comprehensive Review and Update

Connect with Nadine: 

Instagram

Facebook

Contact via Email

‘Your Skin on Gluten’ on YouTube

Books by Nadine:

Dough Nation: A Nurse's Memoir of Celiac Disease from Missed Diagnosis to Food and Health Activism

May 12, 2017

Given the choice between a heart transplant and a gluten-free diet, the vast majority – if not all – of us would quickly opt for the diet! Yet the medical community continues to ignore celiac disease as a potential cause of cardiac complications, despite documented connections between the two conditions.

The Gluten Free RN is sharing her experience with heart attack and stroke victims in the ER, and discussing the necessity of screening cardiac patients for celiac disease. She gets into the nitty gritty of how intestinal damage leads to nutrient deficiencies that affect the cardiac system, and reveals the cardiac symptoms that may resolve on a gluten-free diet.

Listen in and learn about the actual cause of heart attack and stroke (spoiler alert – it’s not high cholesterol) and how Nadine has achieved a lipid panel akin to that of a ‘23-year-old marathon runner’!

What’s Discussed: 

The connection between cardiac issues and celiac disease

  • Study linked celiac disease to almost doubled risk of CAD
  • Documented connection between gluten and cardiomyopathy

The real cause of heart attack and stroke

  • Thought to be high cholesterol
  • Actual cause is inflammation/malabsorption

How a gluten-free diet can resolve cardiomyopathy

  • Medical community claims cardiomyopathy can be treated with meds, but not cured
  • Patient eventually needs heart transplant
  • Anecdotal evidence proves that removing gluten may cure profound heart failure

Nadine’s experience in treating cardiac patients as a critical care nurse in the ER

  • ER staff does not take a magnesium panel
  • Deficiencies in magnesium or calcium can cause arrhythmias (irregular heartbeat)
  • Even when patient tested for ‘everything,’ celiac disease and nutritional panels often omitted

How to correct a magnesium deficiency

  • Food (pumpkin seeds, molasses, etc.)
  • Magnesium supplements (including calcium, zinc and vitamin D)

How intestinal damage leads to nutrient deficiencies that affect the cardiac system

  • Thiamine deficiency may lead to wet beriberi or acute pernicious beriberi
  • Low electrolytes may lead to arrhythmia
  • Low iron, B vitamin may lead to anemia (less oxygen in blood)
  • Low vitamin K levels affects protein S and protein C levels (involved in clotting)

Cardiac symptoms that may resolve on a gluten-free or Paleo diet

  • Arrhythmias
  • Chest pain
  • Difficulty breathing

The myth that fat is bad for us

  • Nadine consumes a super-good high fat diet
  • Her lipid panel ‘looks like a 23-year-old marathon runners’
  • Cardiac risk factor very low

Nadine’s call for a worldwide mass screening for celiac disease

  • Find undiagnosed
  • Prevent cardiac disease, stroke

Resources:

“Celiac Disease Linked to Almost Doubled Risk of CAD” by Marlene Busko

PubMed

Gluten Toxicity: The Mysterious Symptoms of Celiac Disease, Dermatitis Herpetiformis, and Non-Celiac Gluten Intolerance by Shelly L. Stuart

Connect with Nadine: 

Instagram

Facebook

Contact via Email

‘Your Skin on Gluten’ on YouTube

Books by Nadine:

Dough Nation: A Nurse's Memoir of Celiac Disease from Missed Diagnosis to Food and Health Activism

May 5, 2017

We all know how it feels to struggle through the day when you didn’t get enough sleep the night before. Your brain feels fuzzy, it’s tough to focus, and you simply aren’t the best version of yourself! The good news is, there may be a simple explanation for your sleep disorder – and there are steps you can take to eliminate the potential celiac symptoms that are keeping you up at night.

Today the Gluten Free RN shares her struggle with sleep deprivation as an undiagnosed celiac patient who also worked the night shift in the ER. Find out how she leveraged a Paleo diet and went from having a contentious relationship with sleep to becoming a champion ‘Olympic Sleeper’ who enjoys at least eight hours of rest every night!

She also covers the components of an ideal sleep space, suggestions for implementing an evening routine, and the benefits of a good night’s rest. Listen and learn about the connection between sleep disorders and undiagnosed celiac disease or non-celiac gluten sensitivity.

What’s Discussed: 

Nadine’s struggle with sleep working the night shift

  • 10 years as ER nurse working 12-hour night shifts
  • Difficult to shift into normal sleep pattern on days off
  • Circadian rhythm thrown off, felt fuzzy-brained
  • Needed extra sleep
  • Struggle to block out distractions

The correlation between undiagnosed celiac disease and sleep disorders

  • Celiac symptoms can keep you awake at night
  • May experience joint pain, muscle pain, DH, eczema, headaches, muscle twitches, restless leg syndrome

How a Paleo lifestyle can alleviate symptoms preventing sleep

How many hours of sleep you should be getting each night

  • Nadine recommends 8-10 hours of good quality sleep
  • Provides the energy for your body to carry out the tasks of daily living

The components of an ideal sleep space

  • Comfortable mattress
  • Quality sheets
  • Plenty of supportive pillows
  • Appropriate temperature
  • Fresh air, if possible
  • No electronic equipment in the room (i.e.: phones, televisions, computers)
  • Source of white noise (e.g.: fan, music)

The model evening routine

  • Limit screen time in the hours before bed
  • Try relaxing activities like reading or knitting instead
  • Take a warm bath with Epsom salt (muscle relaxer, source of magnesium)
  • Consider magnesium supplements

Celiac symptoms that can cause sleep apnea

How your body heals neurological damage in the absence of gluten

The repercussions of vitamin C deficiency

Signs of sleep disorders in children that may be caused by undiagnosed celiac disease

  • Can’t or don’t want to go to sleep, crying
  • Cranky and fatigued during the day
  • Decreased productivity
  • Learning disabilities
  • Difficulty with focus

Signs of celiac disease in children

  • Short stature
  • Anemia
  • Falling off growth chart
  • Learning disabilities
  • Seizure disorders

Why anyone with sleep disorders should get tested for celiac disease

How Nadine’s sleep issues went away on a gluten-free diet

  • Eliminated back pain, joint pain, skin discomfort, muscle pain, muscle spasms and leg cramps
  • Now she qualifies as an ‘Olympic Sleeper’

The unhealthy approach to compensating for lack of sleep

  • Take in stimulants to make it through the day (e.g.: coffee, sugar)
  • Take depressants at night to help fall asleep (e.g.: alcohol, prescription meds)
  • Everything you consume impacts your health and ability to sleep

A healthy option that functions as a sleep aid

The benefits of a good night’s rest

When to take multivitamins

  • In the morning with food
  • At night before bed (absorbed differently)

The risks associated with prescription medications

Connect with Nadine: 

Instagram

Facebook

Contact via Email

‘Your Skin on Gluten’ on YouTube

Books by Nadine:

Dough Nation: A Nurse's Memoir of Celiac Disease from Missed Diagnosis to Food and Health Activism

 

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